Kaye and her son Lazarus Banez are seen in an undated family handout photo. The mother, in Richmond, B.C., said school staff told her earlier that Lazarus would need to return to his Grade 6 classes in person by mid-November or face removal from the independent school. THE CANADIAN PRESS/HO-*MANDATORY CREDIT*

Kaye and her son Lazarus Banez are seen in an undated family handout photo. The mother, in Richmond, B.C., said school staff told her earlier that Lazarus would need to return to his Grade 6 classes in person by mid-November or face removal from the independent school. THE CANADIAN PRESS/HO-*MANDATORY CREDIT*

B.C. families of neurodiverse kids left scrambling before school starts: advocates

Advocates say they’d like to see school districts reaching out to families directly to build educational plans

Kaye Banez cried with relief after learning that her eight-year-old son Lazarus, who is on the autism spectrum, can enrol at his school remotely this fall.

The mother in Richmond, B.C., said school staff told her earlier that Lazarus would need to return to his Grade 3 classes in person by mid-November or face removal from the independent school.

The risk is too high for Lazarus to go back at this point in the COVID-19 pandemic, said Banez, since he relies on touch to sense the world around him and struggles with physical distancing.

“We’re also trying to keep everybody around him safe,” added Banez, noting she has diabetes and her kids’ grandparents on both sides of the family have compromised immune systems.

Banez said it was agonizing as her family worried they would be forced to register Lazarus and his six-year-old sister for home schooling. That would mean Lazarus would lose access to supports, such as speech and occupational therapies, that are paid for through funding that depends on enrolment in school or a distributed learning program — many of which are at capacity, she said.

After meeting with staff from her kids’ school and the Ministry of Education’s inclusive education division on Friday, Banez learned about provincial guidelines that stipulate school districts are required to make so-called “homebound” educational services available to students absent from the classroom because of medical and psychiatric reasons.

The expectation that schools work with families who need access to the homebound program is included in the province’s document guiding the response to the pandemic for students in kindergarten to Grade 12.

However, Banez said she is in touch with another mother on Vancouver Island whose child is on the autism spectrum and who hasn’t yet secured a remote learning option through their school.

“She’s done everything that I’ve done and the answer is still no. So, she’s doing now another step of saying she’s aware of this operational guideline,” said Banez, who serves as the vice president of the board of directors for AutismBC.

“It’s still very inconsistent. Even though the process that parents take to advocate for these accommodations is the same, there’s still children being left behind.”

READ MORE: B.C. school staff, older students required to wear masks in ‘high traffic areas’

It shouldn’t be up to parents to explicitly invoke their rights in order to ensure their kids can access the educational instruction and other supports they need, said Banez.

That’s especially true for parents who are newcomers to Canada and may struggle navigating back-to-school resources that are available primarily in English, she added.

“How could they possibly be calling government officials, school boards, principals, media, writing letters, reading operational guidelines (and) documents pages and pages long?” she asked.

The founder and chair of BCEdAccess, a volunteer-run organization that advocates for equitable access to education for complex learners and kids with diverse abilities, echoed Banez.

Tracy Humphreys said she’d like to see schools and districts reaching out to families directly to build educational plans that address their unique needs.

“The public system has had months now to be aware that there’s a pandemic and that September was coming and that they needed a better plan. It does feel like families, like children with disabilities, have been left out of that plan,” said Humphreys.

In an email, Ministry of Education representatives confirmed their expectation that school districts will be flexible and work with families on a case-by-case basis, including helping families of children with disabilities who aren’t comfortable sending their kids back to the classroom this fall.

But with school starting in a matter of days, Humphreys said she’s waiting for flexible options that meet provincial requirements and expectations to be fully implemented across the province.

“We’re seeing, you know, 60 school districts, plus independent schools, who are under the same direction from the Ministry of Education, responding in very different ways,” she said.

As for Lazarus, Banez said he’s excited to start what they call “mommy school” on Sept. 21.

Brenna Owen, The Canadian Press


Like us on Facebook and follow us on Twitter.

Want to support local journalism during the pandemic? Make a donation here.

CoronavirusEducationSchools

Get local stories you won't find anywhere else right to your inbox.
Sign up here

Just Posted

Power outages affected thousands of BC Hydro customers in the north on Jan. 14 (File photo) (File photo)
Power outages affect thousands of BC Hydro customers in northern B.C.

Transmission failure led to outages in Prince Rupert and Port Edward

A Prince Rupert port expansion project received a $25 million investment from the provincial government, the Ministry of Transportation and Infrastructure announced on Jan. 14. Seen here is Ridley Terminals Inc., a coal export terminal in Prince Rupert (Shannon Lough / The Northern View)
$25 million government investment in Prince Rupert port expansion project

Prince Rupert port expansion project expected to create more than 2,200 jobs

For the second time in less than a year, Air Canada announced on Jan. 13 it has suspended flights on the Prince Rupert-Vancouver route as of Jan 17. (Photo by: Jerold Leblanc)
Cessation of flights to YPR will affect the municipal economy and global trade, P.R. Mayor said

Chamber of Commerce said it will aggressively pursue the resumption of flights to Prince Rupert

Air Canada has suspended flights to Prince Rupert Regional Airport due to COVID-19 mitigation, the airline announced on Jan. 13. (Photo:THE CANADIAN PRESS/Darryl Dyck)
YPR is not immune to plummeted air travel demands – 25 jobs lost

Prince Rupert Regional Airport flight cancellation will levee significant hardship - Rick Leach

Health Minister Adrian Dix and provincial health officer Dr. Bonnie Henry head for the press theatre at the B.C. legislature for an update on COVID-19, Jan. 7, 2021. (B.C. government)
B.C.’s COVID-19 spread steady with 509 new cases Friday

Hospitalized and critical care cases decline, nine deaths

Seasonal influenza vaccine is administered starting each fall in B.C. and around the world. (Langley Advance Times)
After 30,000 tests, influenza virually nowhere to be found in B.C.

COVID-19 precautions have eliminated seasonal infection

Prime Minister Justin Trudeau listens to a question during a news conference outside Rideau cottage in Ottawa, Friday, January 8, 2021. THE CANADIAN PRESS/Adrian Wyld
Trudeau says Canada’s COVID vaccine plan on track despite Pfizer cutting back deliveries

Canadian officials say country will still likely receive four million doses by the end of March

Jobs Minister Ravi Kahlon shared a handwritten note his son received on Jan. 13, 2021. (Ravi Kahlon/Twitter)
Proud dad moment: B.C. minister’s son, 10, receives handwritten note for act of kindness

North Delta MLA took to Twitter to share a letter his son received from a new kid at school

Lilly and Poppy, two cats owned by Kalmar Cat Hotel ownder Donna Goodenough, both have cerebellAr hypoplasia, a genetic neurological condition that affects their ability to control their muscles and bones. Photo by Alistair Taylor – Campbell River Mirror
VIDEO: Wobbly Cats a riot of flailing legs and paws but bundles of love and joy to their owner

Woman urges others to not fear adopting cats with disabilities

Chief public health officer Dr. Theresa Tam provides an update on the COVID-19 pandemic in Ottawa on Friday, Jan. 8, 2021. THE CANADIAN PRESS/Sean Kilpatrick
Canada’s top doctor says to avoid non-essential travel as B.C. explores legal options

Premier John Horgan says he is seeking legal advice on whether it can limit interprovincial travel

Martin Luther King Jr. addresses the crowd during the march on Washington, D.C., in August of 1963. Courtesy photo
Government reinforces importance of anti-racism act on Black Shirt Day

B.C. Ministers say education “a powerful tool” in the fight for equity and equality

Black Press media file
Port McNeill driver tells police he thought the pandemic meant no breathalyzers

Suspect facing criminal charges after breathalyzer readings in excess of 3.5 times the legal limit

Forestry companies in B.C. agree to abide by the cedar protocols based on traditional laws of the First Nation members of the Nanwakolas Council. (Photo courtesy, Nanwakolas Council)
Landmark deal sees B.C. forest firms treat big cedars like a First Nation would

Western Forest Products, Interfor among companies to adapt declaration drafted by Nanwakolas Council

Most Read